- The Family Leadership Series…a first step toward changing the world!
- 5K Walk/Run – May 4th
- St. Gabriel’s Church
- Strangers in the House: The Dilema of Living with In-Home Services
Some highlights included in the newsletter:
- The Arc of Massachusetts FY’2020 Budget Narrative Governor Baker’s Proposal
- AFAM’s 15th Annual Autism Advocacy Day
- Medical Safeguarding Protecting the Health and Lives of
- DDS 101
- Strangers in the House
Whether you are a runner, a walker, or a roller…you can participate in this fun event and you will be helping to raise awareness, and be a part of our community.
The first 125 registered adults receive an event T-Shirt and all registered children (under 12) also receive an event T-Shirt
Join us on May 4th for a great morning of fun as we Walk or Run through Fairhaven with family, friends and neighbors while raising awareness and support for The Nemasket Group. We encourage all people of all abilities to participate in this fund/friendraiser. Friendly dogs are also very welcomed to join us!
Registration 8:00 AM
Runners Start 9:00 AM
Walkers Start 9:05 AM
Patricia Stone, In Memory of Conrad Stone
Contact HeidiPina-Barnes@NemasketGroup.org if you would like to register a team, and also to let her know your t-shirt size.
Medical Safeguarding: Protecting the Health and Lives of Vulnerable People
This workshop is based on the work of Dr. W. Wolfensberger of the Syracuse University Training Institute, as well as the practical experiences of clinicians, family members, and advocates. The workshop explores the unpleasant and paradoxical reality that anyone who is hospitalized is exposed to grave dangers which jeopardize that person’s health and safety, sometimes to the point of affecting whether they live or die. The workshop will offer practical information and examples on necessary guidelines and measures for protecting people in the hospital.
When: Tuesday, April 23, 2019
9:00am – 3:00pm
Where: Rosebrook Event Center
50 Rosebrook Place
Wareham, MA 02571
Suggested Audience: Individuals who have disabilities or are otherwise socially disenfranchised; Family members, friends and advocates who have children, parents or other relatives with medical needs; Human Service and Medical Staff
Jo Massarelli is Director of the SRV Implementation Project based which is based in Massachusetts (USA). Jo is a consultant to the Medical Safeguards Project, an effort of physicians and nurses who seek to protect the lives of impaired people in medical settings. Jo Massarelli assists the families and the nurses to view the people they serve in more than the “patient” role. She presents workshops on protecting vulnerable people in hospitals, on medical decision-making, and on ideological issues surrounding treatment measures.
Cathy Ludlum’s personal and professional activities focus on the inclusion of people with disabilities in all areas of community life. As a person with a disability and an employer of personal assistants since 1988, Cathy brings an extensive background in the recruitment, hiring, and management of support staff. She has written several books, including a manual on how to hire personal assistants. She teaches workshops on demystifying assisted hydration and nutrition, or what it is like to have a g-tube. She has lived independently (with support) since 1992.
To register, please follow this link: conta.cc/2D1ZX02
** Nursing CEU’s will be available**
Just a sampling of the article topics:
- A Full Life Ahead – Facebook LIVE
- SE Family Leadership Series
- The Power of One…Revolutionary Common Sense
- Supported Decision Making
- The Arc Mass – Annual Legislative Reception
- Leading by Example, The Arc Mass – 2019 GALA
- 5K Walk/Run – May 4th 2019
Families and individuals who receive in-home support services typically face a major problem when trying to maintain the integrity of their private home and family lives despite the inescapable disruptions that come with service-provider presence in the home, especially when the support is very extensive or involves many different workers. This difficulty exists even when families and individuals have good personal relationships with their in-home support personnel, and even when they are adequately sensitive to the issues at stake. But when good personal relationships and sensitivity are absent, the situation can become intolerable.
This one-day presentation explores the dilemma of living with in-home services. It offers insights, practical advice and strategies for managing the issues involved, and invites participants’ reflections on the types of mind-sets that might improve or worsen this dilemma.
Monday, April 29, 2019
9:00am – 4:00pm Workshop
Lunch will be provided
BayCoast Bank – Conference Center
330 Swansea Mall Drive
- Individuals, family members and care-givers who currently use, or in the future may use, in-home supports
- representatives of support-providing services, including: visiting nurses, hospice workers, home health aides, respite workers, personal care assistants, direct support professionals and supervisors
About the Presenter:
This workshop was developed, and will be presented, by Jo Massarelli, of the Social Role Valorization Implementation Project in Worcester, Massachusetts. Professionally, Jo has long been involved with families and individuals who receive in-home supports, as well as representatives of support-providing services. Personally, she has been a caregiver for family members and neighbors who also have had in-home services.
Sponsored by: DDS Regional Training Council, New Bedford Area Training Committee, Fall River Area Training Committee, and The Nemasket Group – Louis Nisenbaum Memorial Scholarship Fund
New Quasi-Institutions as Examples of Human Service Unconsciousness
by: Martin Elks
The SRV Journal – July 2016
THE FRIENDSHIP CORNER
Strategies for Direct Support Professionals To Promote Friendships Between The People They Support And Unpaid People without Disabilities in the Community
By Mary Ann Brennen & Jim Ross
Widening the Circle
Many people with intellectual and developmental disabilities still live in a world in which they are congregated together and segregated from their peers without disabilities. Kids with disabilities may be sent to specialized schools far from their neighborhood. Even if they go to their local public school, they may be in substantially separate classrooms. Recreational opportunities may be limited to activities with other kids with disabilities. Adults might live in group homes or still in institutions. Work might be in Day Habs or workshops or enclaves.
Perhaps your most important responsibility as DSPs is facilitating relationships between the people you support and unpaid people in the community who do not have disabilities. You may feel that helping people make these important connections is too complicated for you in your busy work, but there are some things that YOU can do to enhance the chances of friendships developing and being sustained over time:
- Do not underestimate the influence you may have on people you support. Be a good role-model in the way you look and act.
- Your relationship to the people you support is important—maybe critical—but do not “mistake” your relationships as friendships. True friendships are uncompensated. If you consider yourself as the “friend”, you are less likely to help the individual seek connections with others in the community. Be friendly, of course, and demonstrate other elements that are inherent in friendships, like trust and caring.
- Get to know the person you support really well. List the kinds of things s/he likes to do and the things s/he would like to try. It helps to have a variety of interests that appeal to others, either broadly (Patriots’ fan) or narrowly (growing giant pumpkins).
- Read local papers, tour your town, talk to people to find out the places where the individual can do the things s/he wants to do with other community members who do not have disabilities. For some ideas go to: thearcofmass.org/resources/recreation/.
- As the person who may know the individual best, you may be able to advocate at the ISP (and elsewhere) that social/relationship goals be set that match the individual’s interests. Include a “relationship factor” within other goals instead of listing it separately. For instance, if losing weight is one of the individual’s goals, there are some ways to do that that have clear social benefits as well (see #9 & #10 below)
- Poll your co-workers, your organization’s Board members, your family, friends and neighbors to find people who share the individual’s interests. Find someone who is willing to introduce the individual into that activity and to support him to participate. (Your organization may require some formalities, like a CORI check.)
- Help the person be as attractive as possible through good grooming and hygiene and dressing in clean clothes that fit well. His/her appearance may be “judged” through various cultural lenses, so be tuned in to that.
- Support the person to act in ways that are as “socially appropriate” as possible. But do NOT ever think that mastery of social niceties is a pre-requisite for you helping someone find friends. In fact, being in a friendship is often the best way for someone to practice those skills.
- Support the person to participate in favored activities on a regular basis. We are creatures of habit. If the person you support is trying to lose weight and belongs to a fitness center, go there on the same days and the same times. Being a “regular” makes it much more likely that s/he will begin to know other folks, and begin to be known by them.
- Help the person participate in the activities in ways that have the greatest possibility of making connections with others. If the person is attending the fitness center to lose weight, they could do so on one of the treadmills, but the people around him/her are likely to be concentrating purely on exercising, headphones on and not interested in interactions with others. But a “spinning” class—on the same days and times each week—may be a good way to both lose weight and interact with fellow spinners. Or a Zumba class…or yoga…or…
- When the person you support is in a friendship, it may take some work to maintain it. “Reciprocity” is important in any friendship. Help the person initiate some activities instead of always waiting for an invitation. Living in a home that is welcoming to guests can go a long ways here. If the person you support is a sports fan, and if s/he has a big screen TV and a killer hot wings recipe, it might not be too hard luring fellow sports fans over for an afternoon.
- If more than one organization supports the individual, get to know people from the other organization. It is likely that you’ll need to coordinate your efforts as new friendships spread across the artificial boundaries of the service system.
If you work in employment settings, there may be other ways to help people make (and keep) friends at work:
- Be sure to build relationship-related goals into the individual’s Person-Centered Career Plan.
- Help the individual understand and participate in the workplace culture, including knowing food/drink routines, knowing where and when workers gather during breaks, what are popular topics of “water-cooler” chats, figuring out if co-workers celebrate birthdays, are their special days (ie. casual Fridays), etc.
- Replace the agency van ride to work with car-pooling with a co-worker if possible.
- Wean from your organization’s job coach to a more natural support from a co-worker ASAP.
We know that helping people build relationships and friendships is not easy. But it is certainly worthwhile. People with friends are happier, healthier and safer. And we all want this for the people we support.
For a broader review of this topic, please read the latest Quality is No Accident brief on “Friendships/Relationships”, located at www.mass.gov/eohhs/consumer/disability-services/services-by-type/intellectual-disability/newsroom/quality-assurance/developmental-services-quality-is-no-accident.html to which Widening the Circle contributed.