Workshop Content: This workshop provides deep background necessary to enable informed people to understand and discern how best to resist the rapidly growing trends within modern culture to legitimize the infliction of grave and often lethal harm on vulnerable citizens by medical means, such as physician-assisted suicide and other efforts to “euthanize” vulnerable people.  These trends are a reality for all citizens but are especially ominous for people who are members of a socially disadvantaged class, such as those who have mental and/or physical impairments, the elderly, people who are socially marginalized, and those who are poor.  Specifically, the workshop will cover the following topics:

  • The sources of vulnerability in medical settings
  • Who is most likely to be harmed by these realities
  • Two mutually opposed ideologies governing life & death medical decisions
  • How “quality of life” thinking pervades modern culture and is actualized in contemporary medical practice
  • How such practices are drenched in lies and deceptions
  • Overview of an alternative positive ideology and what it implies
  • What concerned people can do to combat life threatening medical practices

Workshop Format: Thursday session is presented in lecture style using slides with opportunity for participant questions, comments, and general discussion.

OCTOBER 29, 2019
ROSEBROOK EVENT CENTER 
50 Rosebrook Place – Wareham, MA
8:00- 8:30 AM Coffee and registration
8:30-4:00 Session
Cost : $40.00 (Lunch included)

Sponsored by SE Department of Developmental Disabilities Learning and Staff Development, Community Systems Inc. and The Nemasket Group, Inc.

Who should attend:

  • Health care advocates
  • Interested citizens and policymakers
  • Advocates, friends, and families of people who have disabilities and other vulnerable people who may be marginalized by society.
  • Human service workers and medical staff
  • People with developmental and other disabilities

 Presenters:
Jo Massarelli, Director of the SRV Implementation Project, Worcester, MA is a consultant to the Medical Safeguards Project, an effort of physicians and nurses who seek to protect the lives of impaired people in medical settings.  She has a particular interest in advocacy in hospitals.  She and her colleagues teach workshops on defending vulnerable people in hospitals and on medical decision-making.

Joe Osburn, Director of the Indiana Safeguards initiative, Indianapolis, IN, has worked in human services since 1964 in a variety of direct service, administrative, and consultative positions primarily with poor families and families with impaired children.  Since 1974, his work has focused particularly on the dissemination and application of normalization/Social Role Valorization (SRV) as a major safeguard in the lives in socially vulnerable people.

Register by October 15, 2019 by contacting Amy Cornell:

AmyCornell@NemasketGroup.org
508-999-4436

Read the September – October 2019 (Newsletter #28) Family Connections Center Newsletter NOW!!!

Some Highlights:

* How High School and College Differ for Students with Disabilities
* Employment Law – FLMA for Special Education Meetings
* Catastrophic Illness in Children Relief Fund
* 7th Annual Community Resource & Craft Extravaganza
* What is Family Support & How Can It Help My Family?
* Fifth Annual Disability Summit
* Parents Retreat – Reflecting on the Journey
* Valuing Lives – Wolf Wolfensberger and the Principle of Normalization

We are grateful to all that helped to ensure the 2019 Golf Tournament held in Memory of Louis Nisenbaum was a smashing success!

Check out a short video created by ORCTV


Click here to view public service announcement VIMEO

Air Cannon Contest is Back thanks to our Air Cannon Sponsors!

2019 Corporate Sponsors:


Tournament Sponsor – BayCoast Bank


Putting Contest Sponsor – Bristol County Savings Bank


Dinner Sponsor – Tichon Seafood Corporation


Cart Sponsor – Ray and Helen Killian


Cart Sponsor – Nordic Inc.


Lunch Sponsor – Sylvia Group


Air Cannon Sponsor – Barry Investment Advisors


Air Cannon Sponsor – Sue Hottel


Air Cannon Sponsor – DeBross, Hathaway, Marvel & Sea Fuels Marine


Hole-In-One Sponsor – Robertson’s GMC

July-August 2019 Family Connections Newsletter #97

The summer Family Connections Center Newsletter has just been released:

  • Meet new Family Support Advocates Yajaira and Ana
  • Summer Sizzler – Friday, August 16th 5-7pm
  • Intelligent Lives Screening – October 20th
  • Family Movie Night – August 8th
  • Resource and Craft Fair – October 20th
  • Fun at Noah’s Place Playground – August 27th
  • Beyond High School:  College and More!
  • Circle of Security Parenting Series
  • Rewarding Work Online Directory & Job Board
  • Family Leadership Series
  • Employee of the Year – Pat Charyk
  • Conference Committee Finalizes Outstanding Budget

Read More Here

THE FRIENDSHIP CORNER

Strategies for Direct Support Professionals To Promote Friendships Between The People They Support And Unpaid People without Disabilities in the Community

By Mary Ann Brennen & Jim Ross

Widening the Circle

Many people with intellectual and developmental disabilities still live in a world in which they are congregated together and segregated from their peers without disabilities.  Kids with disabilities may be sent to specialized schools far from their neighborhood.  Even if they go to their local public school, they may be in substantially separate classrooms.  Recreational opportunities may be limited to activities with other kids with disabilities.  Adults might live in group homes or still in institutions.  Work might be in Day Habs or workshops or enclaves.

Perhaps your most important responsibility as DSPs is facilitating relationships between the people you support and unpaid people in the community who do not have disabilities.  You may feel that helping people make these important connections is too complicated for you in your busy work, but there are some things that YOU can do to enhance the chances of friendships developing and being sustained over time:

  1. Do not underestimate the influence you may have on people you support. Be a good role-model in the way you look and act.
  1. Your relationship to the people you support is important—maybe critical—but do not “mistake” your relationships as friendships. True friendships are uncompensated.  If you consider yourself as the “friend”, you are less likely to help the individual seek connections with others in the community.  Be friendly, of course, and demonstrate other elements that are inherent in friendships, like trust and caring.
  1. Get to know the person you support really well. List the kinds of things s/he likes to do and the things s/he would like to try.  It helps to have a variety of interests that appeal to others, either broadly (Patriots’ fan) or narrowly (growing giant pumpkins).
  1. Read local papers, tour your town, talk to people to find out the places where the individual can do the things s/he wants to do with other community members who do not have disabilities. For some ideas go to:  thearcofmass.org/resources/recreation/.
  1. As the person who may know the individual best, you may be able to advocate at the ISP (and elsewhere) that social/relationship goals be set that match the individual’s interests. Include a “relationship factor” within other goals instead of listing it separately.  For instance, if losing weight is one of the individual’s goals, there are some ways to do that that have clear social benefits as well (see #9 & #10 below)
  1. Poll your co-workers, your organization’s Board members, your family, friends and neighbors to find people who share the individual’s interests. Find someone who is willing to introduce the individual into that activity and to support him to participate.  (Your organization may require some formalities, like a CORI check.)
  1. Help the person be as attractive as possible through good grooming and hygiene and dressing in clean clothes that fit well. His/her appearance may be “judged” through various cultural lenses, so be tuned in to that.
  1. Support the person to act in ways that are as “socially appropriate” as possible. But do NOT ever think that mastery of social niceties is a pre-requisite for you helping someone find friends.  In fact, being in a friendship is often the best way for someone to practice those skills.
  1. Support the person to participate in favored activities on a regular basis. We are creatures of habit.  If the person you support is trying to lose weight and belongs to a fitness center, go there on the same days and the same times. Being a “regular” makes it much more likely that s/he will begin to know other folks, and begin to be known by them.
  1. Help the person participate in the activities in ways that have the greatest possibility of making connections with others. If the person is attending the fitness center to lose weight, they could do so on one of the treadmills, but the people around him/her are likely to be concentrating purely on exercising, headphones on and not interested in interactions with others.  But a “spinning” class—on the same days and times each week—may be a good way to both lose weight and interact with fellow spinners.  Or a Zumba class…or yoga…or…
  1. When the person you support is in a friendship, it may take some work to maintain it. “Reciprocity” is important in any friendship.  Help the person initiate some activities instead of always waiting for an invitation.  Living in a home that is welcoming to guests can go a long ways here.  If the person you support is a sports fan, and if s/he has a big screen TV and a killer hot wings recipe, it might not be too hard luring fellow sports fans over for an afternoon.
  1. If more than one organization supports the individual, get to know people from the other organization. It is likely that you’ll need to coordinate your efforts as new friendships spread across the artificial boundaries of the service system.

If you work in employment settings, there may be other ways to help people make (and keep) friends at work:

  1. Be sure to build relationship-related goals into the individual’s Person-Centered Career Plan.
  1. Help the individual understand and participate in the workplace culture, including knowing food/drink routines, knowing where and when workers gather during breaks, what are popular topics of “water-cooler” chats, figuring out if co-workers celebrate birthdays, are their special days (ie. casual Fridays), etc.
  1. Replace the agency van ride to work with car-pooling with a co-worker if possible.
  1. Wean from your organization’s job coach to a more natural support from a co-worker ASAP.

We know that helping people build relationships and friendships is not easy.  But it is certainly worthwhile.  People with friends are happier, healthier and safer.  And we all want this for the people we support.

For a broader review of this topic, please read the latest Quality is No Accident brief on “Friendships/Relationships”, located at www.mass.gov/eohhs/consumer/disability-services/services-by-type/intellectual-disability/newsroom/quality-assurance/developmental-services-quality-is-no-accident.html  to which Widening the Circle contributed.