- The Family Leadership Series…a first step toward changing the world!
- 5K Walk/Run – May 4th
- St. Gabriel’s Church
- Strangers in the House: The Dilema of Living with In-Home Services
Some highlights included in the newsletter:
- The Arc of Massachusetts FY’2020 Budget Narrative Governor Baker’s Proposal
- AFAM’s 15th Annual Autism Advocacy Day
- Medical Safeguarding Protecting the Health and Lives of
- DDS 101
- Strangers in the House
Whether you are a runner, a walker, or a roller…you can participate in this fun event and you will be helping to raise awareness, and be a part of our community.
The first 125 registered adults receive an event T-Shirt and all registered children (under 12) also receive an event T-Shirt
Join us on May 4th for a great morning of fun as we Walk or Run through Fairhaven with family, friends and neighbors while raising awareness and support for The Nemasket Group. We encourage all people of all abilities to participate in this fund/friendraiser. Friendly dogs are also very welcomed to join us!
Registration 8:00 AM
Runners Start 9:00 AM
Walkers Start 9:05 AM
Patricia Stone, In Memory of Conrad Stone
Contact HeidiPina-Barnes@NemasketGroup.org if you would like to register a team, and also to let her know your t-shirt size.
Medical Safeguarding: Protecting the Health and Lives of Vulnerable People
This workshop is based on the work of Dr. W. Wolfensberger of the Syracuse University Training Institute, as well as the practical experiences of clinicians, family members, and advocates. The workshop explores the unpleasant and paradoxical reality that anyone who is hospitalized is exposed to grave dangers which jeopardize that person’s health and safety, sometimes to the point of affecting whether they live or die. The workshop will offer practical information and examples on necessary guidelines and measures for protecting people in the hospital.
When: Tuesday, April 23, 2019
9:00am – 3:00pm
Where: Rosebrook Event Center
50 Rosebrook Place
Wareham, MA 02571
Suggested Audience: Individuals who have disabilities or are otherwise socially disenfranchised; Family members, friends and advocates who have children, parents or other relatives with medical needs; Human Service and Medical Staff
Jo Massarelli is Director of the SRV Implementation Project based which is based in Massachusetts (USA). Jo is a consultant to the Medical Safeguards Project, an effort of physicians and nurses who seek to protect the lives of impaired people in medical settings. Jo Massarelli assists the families and the nurses to view the people they serve in more than the “patient” role. She presents workshops on protecting vulnerable people in hospitals, on medical decision-making, and on ideological issues surrounding treatment measures.
Cathy Ludlum’s personal and professional activities focus on the inclusion of people with disabilities in all areas of community life. As a person with a disability and an employer of personal assistants since 1988, Cathy brings an extensive background in the recruitment, hiring, and management of support staff. She has written several books, including a manual on how to hire personal assistants. She teaches workshops on demystifying assisted hydration and nutrition, or what it is like to have a g-tube. She has lived independently (with support) since 1992.
To register, please follow this link: conta.cc/2D1ZX02
** Nursing CEU’s will be available**
Just a sampling of the article topics:
- A Full Life Ahead – Facebook LIVE
- SE Family Leadership Series
- The Power of One…Revolutionary Common Sense
- Supported Decision Making
- The Arc Mass – Annual Legislative Reception
- Leading by Example, The Arc Mass – 2019 GALA
- 5K Walk/Run – May 4th 2019
Families and individuals who receive in-home support services typically face a major problem when trying to maintain the integrity of their private home and family lives despite the inescapable disruptions that come with service-provider presence in the home, especially when the support is very extensive or involves many different workers. This difficulty exists even when families and individuals have good personal relationships with their in-home support personnel, and even when they are adequately sensitive to the issues at stake. But when good personal relationships and sensitivity are absent, the situation can become intolerable.
This one-day presentation explores the dilemma of living with in-home services. It offers insights, practical advice and strategies for managing the issues involved, and invites participants’ reflections on the types of mind-sets that might improve or worsen this dilemma.
Monday, April 29, 2019
9:00am – 4:00pm Workshop
Lunch will be provided
BayCoast Bank – Conference Center
330 Swansea Mall Drive
- Individuals, family members and care-givers who currently use, or in the future may use, in-home supports
- representatives of support-providing services, including: visiting nurses, hospice workers, home health aides, respite workers, personal care assistants, direct support professionals and supervisors
About the Presenter:
This workshop was developed, and will be presented, by Jo Massarelli, of the Social Role Valorization Implementation Project in Worcester, Massachusetts. Professionally, Jo has long been involved with families and individuals who receive in-home supports, as well as representatives of support-providing services. Personally, she has been a caregiver for family members and neighbors who also have had in-home services.
Sponsored by: DDS Regional Training Council, New Bedford Area Training Committee, Fall River Area Training Committee, and The Nemasket Group – Louis Nisenbaum Memorial Scholarship Fund